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Vital Info

Name:
DJ (deej)

Member Since:
June 25, 2010

Location:
Toronto, Canada

Birthday:
April 28, 1961

Profile:
Cancer Fighter

Cancer Info

Type of Cancer:
Anal Cancer

Medical Term for the Type of Cancer:
squamous cell carcinoma

Diagnosis Date:
May 19, 2010

Stage of Cancer:
Stage 2

Tumor Size:
06

Lymph Node Involvement:
Yes

Chemotherapy:
Fluorouracil (5-FU)

Cancer Center:
Princess Margaret Hospital - Toronto

Anal Cancer Symptoms:

Massive blood discharge followed by smaller discharges, Diaheara, discomfort and a long ago battle with anal HPV

Radiation or Proton Therapy Description, Dates & Side Effects:

7 weeks

Chemotherapy Description, Dates & Side Effects:

Mytomycin and 5-FU first weeks then 5th week

Stats

Posts: 60

Photos: 5

Events: 0

My Supporters: 65

I Support: 28

Comments: 125

DJ's Cancer Blog

Chemo sucks

Its all fun and games till the side effects hit!

Two days after the 7” needle came out it started. Felt the fatigue, headaches, then the mouth sores started. Now it’s full on mucositis. Swollen cracked tongue, sores, lots a pain. Soft intake only.
Intestinal unpredictability. Oh and tinitus as a bonus.

Can tell by Stan’s appearance it’s running all the way thru me.

Called the chemo daycare and had mucositis mouthwash delivered today.
Helps a bit. Hopefully better with every go.

Today however, I do feel a bit more…...grounded. And I have dropped some weight.
No scale here so can’t say how much.

Can’t believe this is supposed to happen in another three weeks!

Holding on best I can…...

Ttfn

Posted on April 23, 2012 at 5:47:39 PM by DJ (Chemo sucks, 20 comments, 608 views)

4 people threw a punch at your cancer.

4 people sent you a hug.

Hang in there, Deej! We are all pulling for you. But I think we all agree—chemo does suck! I hope your side effects subside real soon!

Hugs—
Martha

Posted on April 23, 2012 at 6:15:49 PM by Private User

Thinking about you! Mouth sores SUCK big time. So sorry! But at least you can blend stuff, like chocolate. Everything tastes better with chocolate, right? Sending positive energy!
Xo
Ruth

Posted on April 23, 2012 at 6:23:54 PM by Ruth

Hi DJ,

So sorry that you have to do this crap again! It does suck. Send you lots of prayers and positive energy! Keep fighting!

xoxoxo
Nancy

Posted on April 23, 2012 at 6:53:33 PM by Private User

deej, continue to HOLD ON! You CAN do this, you MUST do this. My heart hurts that you are having such a difficult time. I am sending special prayers your way; praying that the ordeal becomes less discomforting, and that the positive result of your treatments will be well worth the pain that you are enduring. Praying that as each day goes by, you will be able to look back and smile, saying, “Umh, that was not so bad after all, and it was well worth the fight.”

Posted on April 23, 2012 at 9:37:21 PM by Spongebob46

Thinking of you and wishing you well Annabelle

Posted on April 24, 2012 at 1:01:41 AM by Annabelle

much love, thoughts, hugs, cat fluff … hope you can find a comfortable way to be today and that the healing is discernible (one day at a time) – ouch to the sore mouth – suck gently on things which feel and taste good … is it time to get friends to pitch up for a visit bearing favourite ice cream / desserts / ice lollies / savoury yoghurt dips? – maybe set a challenge to see who provides the best “comfort” food! love to you. xx

Posted on April 24, 2012 at 2:05:04 AM by Private User

Love that idea Janet!

Posted on April 24, 2012 at 4:38:40 AM by DJ

Chemo does suck! Mucositis must be miserable. Makes it harder to go back and do it again! Hang in there! I hope it gets better. Sending hugs!

Posted on April 24, 2012 at 5:08:53 AM by Eileen

Chemo does suck! Soon it will be behind you…

Posted on April 24, 2012 at 7:05:51 AM by Charity

Deej – Hang in there and keep your laughter as these chemo days will pass. Rumor has it that humans, the only animal that laughs, invented laughter as we alone have to endure the deepest suffering. You seem to me so very strong and I know you will be able to (at least at times) laugh in the face of this drug’s dichotomous nature of foe and friend. Many hugs to you as you get through this. I pray for speed in these side effects biting the dust and making round 2 feel less painful.

Posted on April 24, 2012 at 9:41:13 AM by Linda

So sorry you are feeling so crappy (no pun intended). We tend to forget , or try to at least, just how awful it feels when the poison is flowing from our brains to our toes. I had the tinnitus from loud rock n roll, but it got worse after chemo. Hoping this is the last time you have to do this, wishing you peace and that the mouth sores go away fast. Comfort eating is a real necessity right now.
xoxo

Posted on April 24, 2012 at 10:13:21 AM by Debbie

sorry to hear you are having the side effects matey. not sure if you can get it in canudia, but colgate has a perowyl mouthwash specifically to treat mouth sores. worked great for me, hope you can find it or something similar up there.

OD@aT

Posted on April 25, 2012 at 8:20:47 AM by Texas Jeff

Thanks Jeff the special mixed mouthwash the doc prescribed has has helped immensely so …..it’s a good thing! Lol

Posted on April 25, 2012 at 1:23:01 PM by DJ

Yuk! That does suck! So sorry – thinking of you!

Posted on April 25, 2012 at 7:22:25 PM by Jana

I wanted to simply send you a hug and let you know someone else is thinking about you. You can do this and I hope our stories give you much courage, hope and support. Sincerely, Frank

Posted on April 25, 2012 at 9:13:46 PM by Frank

DJ, hope this has been a good birthday for you despite all this ugly stuff and you have found a way to celebrate. Keep on truckin’ kiddo!

Posted on April 28, 2012 at 9:50:28 PM by Private User

DJ; Here you go again. Isn’t life a big bag of sh** sometimes? You must be wondering how is it that I have to do this all over again? I haven’t a clue how to answer that one, nor do I really believe in chemo treatments. I don’t know how people, you being one of many thousands are willing to go through it, but knowing so many benefited from the tortuous treatment and come out the other side, with more years to their lives, seems to be the answer for most of us. I haven’t had to face that decision yet, but no doubt it will be coming. I admire your intense courage and strength to face this not once but twice. If you have any good pointers to those who are going through treatment it would be a good thing to write a post about how you feel good and bad about chemo. I think we should always receive guidance from those who have ventured before us. I pray for a good couple of weeks between your next jolt.

Posted on April 30, 2012 at 9:23:22 PM by Louise

You are amazing!

Posted on May 1, 2012 at 7:03:35 PM by Jana

Thinking of you Deej!
d xoxo

Posted on May 11, 2012 at 8:56:50 AM by Mendoguy

Chemo boy

Here it is Tuesday April 18 and just waiting to be unplugged.

Last Thursday night in hospital for infusion of Cisplatin and hydrate kidneys for coming attacks
Friday aft sent home with 4 day 5 fu pump. Nurse comes in daily to chance bag. Nice eh?
So far side effects minimal following nausea protocol. Some headache, red face and chest and constipation but nothing serious…except having a third attachment on my body!

Should hear this week about third drug for added bang. Just a few hour infusion twice monthly.

Am feeling toxic to a degree and having catheter does make sure kidneys and bladder are emptying everything out efficiently.

Hopefully no big side effects coming next few weeks…..

Crazy how generally I feel fine ( till I look in mirror). Still no weight loss.

In with anger out with love….as Edina says!

The Deej

Posted on April 17, 2012 at 6:36:41 AM by DJ (Chemo boy, 9 comments, 624 views)

Yo likes this.

3 people threw a punch at your cancer.

3 people sent you a hug.

good to hear from you deej. sounds as if you are on your way again, hope it all goes smoothly for you and the side effects are minimal if non-existent. glad to hear you are getting the 5fu at home rather than being stuck in a hospital. something about being at home, even if you do have a temporary 3rd attachment, rather than in hospital helps with a better sense of normalcy, whatever that is, in your life. as always, we are all pulling for you and keep us posted.

OD@aT

Posted on April 17, 2012 at 7:02:44 AM by Texas Jeff

Hi Deej—
It’s so good to hear from you and know that you are tolerating the chemo regime fairly well. You must have a good appetite if your weight is holding steady—that’s great! I’m glad you are getting good care and I hope that you’ll continue to do well during the upcoming treatments. Please keep us posted when you can! Take care!

Hugs—
Martha

Posted on April 17, 2012 at 7:57:41 AM by Private User

Wishing you well Hugs Annabelle

Posted on April 17, 2012 at 9:42:52 AM by Annabelle

Deej you are my treatment buddy. I hope this one whacks everything! I had the 5-FU “handbag” (not a fashion statement to be sure) and found the sound of the pump to be vaguely comforting in the night.

Keep on posting!

XOXO

Posted on April 17, 2012 at 1:51:27 PM by Private User

Hi Deej! I’m glad to hear from you! Sending my warmest wishes.
xo
Ruth

Posted on April 17, 2012 at 5:18:26 PM by Ruth

Hello Deej – good to hear from you. Glad you are under way with treatment. Sending love and strength to your body to manage the side-effects whilst the chemo hits those mutants. Wishing you a really good outcome from all this (and some laughs and lightness along the way). Thinking of you. xx

Posted on April 17, 2012 at 11:11:12 PM by Private User

Hi, Deej. You sound like a fighter and are staying positive…That’s strength. My thoughts are with you and praying you render a KO punch right where it counts. Best of luck.

Posted on April 21, 2012 at 5:22:42 PM by Linda

Deej…your courage and strength is an example to all of us here on the blog! You have been through way more than anyone should have to endure my friend! Sending you positive energy and big hugs!
d xoxo

Posted on April 22, 2012 at 6:53:15 AM by Mendoguy

Deej, best wishes to you. Good to know that despite all that you are going through, you have kept your sense of humor, and most of all, that you are feeling fine. The look in the mirror just shows what a strong person you are and how determined you are to get through the changes that are taking place.
Best wishes Deej!

Posted on April 23, 2012 at 2:07:57 PM by Spongebob46